About this Research
The research aims to improve the capability of young children with motor impairment by the development of an online system with social networking capabilities that can overcome difficulties associated with face to face contact. The system will enable support within and between care circles by improving the current communication options at their disposal. This system will also support members of the family and professionals involved in the care of the child in providing a range of information to support them with the care of their child: information in choice and use of assistive devices; communicate with other care circles; thoughts, events and news items; and other useful sources of support and information. This will provide better support care circles to work towards enhancing children's capabilities.
Purpose: This study is conducted to identify if an online system with social networking capabilities improves the existing support and solutions you have with regard to the individual(s) you care for.
I am a PhD student in Northumbria University and if you have any queries, you may contact me, Jennifer George on 079 3080 1010 or firstname.lastname@example.org
Your time and effort is truly appreciated.
What are you being asked to do?
You will be asked to use an online system with social networking capabilities for a set period of time as much as you think appropriate. Tasks you may complete:
Invite others as you think fit. This could include, other parents, your immediate and extended family members; colleagues; medical practitioners; educationalists;
Ask questions from those you have added to the circle;
Use and share the information in the website;
Find information and make requests for information you cannot find;
After a 3 months of usage, you will be asked to complete a questionnaire.
Participation in this study is voluntary.
All information will remain strictly confidential. The descriptions and findings may be used to help improve the social network. However, at no time will your name or any other identification be used.
The data collected in this study may be used in research publications, but anonymised.
You can omit any questions you may wish not to answer.
You can withdraw your consent to the study and stop participation at any time.
Information obtained in this study, including this consent form, will be kept strictly confidential (i.e. will not be passed to others), and anonymous (i.e. individuals and organisations will not be identified unless this is expressly required and consented to separately in writing).
Data obtained through this research will not be used for purposes other than those outlined above without your separate written consent.
Access to your data may be necessary to address any technical problems.
You can edit or delete any information you have added to the system.
Participation is entirely voluntary and you may withdraw at any time within the next 4 months, for any reason, without any need to explain. Where results have not been analysed and published, your data will be destroyed on request.
By selecting the Accept option, you indicate that you fully understand the above information and agree to participate in this study on this basis.